Dr Bergmann, patients’ medical records are a particularly touchy issue. Nonetheless, NeuroTransData (NTD) already has a huge library of those datasets. To what purpose?
With more than 600,000 patients each year, we meanwhile have built up Germany’s largest trove of data on multiple sclerosis, dementia, epilepsy, depression, schizophrenia and bipolar disorders. Our patients can be sure that we collect, store and handle their data with the utmost care, in keeping with German and EU data protection guidelines. Patient-specific identifiers such as name, gender and age never leave the doctor’s office – we only receive anonymised medical information, which we collect via our central server and then assign a discreet four-digit alphanumeric for storage and retrieval purposes. But just as important as the data security aspect is making sure that each patient clearly understands the ultimate benefit they can gain from this database. This is because collecting the relevant information takes time, and the patients need to be willing to make the effort.
And what benefit might that be?
The participating physician can use our system to draw on vast datasets relating to previous treatments and therapeutic approaches. With this input, the doctor can generate a precisely tailored ranking of medications suitable for treating the specific ailment. Physicians can then determine the most effective therapeutic method for each of their patients, as validated by “real-world data”.